One day with autism (parent)

Introduction

My name is Sarah, and I'm a 35-year-old mother of a beautiful 3-year-old boy, Liam, who has been diagnosed with Autism Spectrum Disorder (ASD). Living with a child with autism means that our family experiences the world a bit differently. We navigate heightened sensitivities to sensory inputs like sounds, lights, and textures, and we have a deep appreciation for routines and patterns.

I'm writing this diary to provide a glimpse into my life and the kinds of days I navigate as a mother of a child with autism. Each day comes with its own set of challenges and routines.

I follow a structured schedule that helps manage expectations and reduces anxiety for both Liam and me. However, new foods and unexpected changes can be tough. I often rely on strategies like creating a quiet corner for Liam and focusing on familiar objects when things get overwhelming.

Through these entries, I hope to share the ups and downs, the victories, and the challenges. Each day is a step in our journey, and I'm learning more about my son and how to navigate a world that isn't always designed for someone like him.

A Day in Our Life

• 6:30 AM - Woke up to the sound of Liam crying. I rushed to his room to comfort him. His world can be overwhelming, and I do my best to provide a calming presence.

• 7:15 AM - Breakfast was a struggle. I tried to introduce a new cereal to Liam, but it was unfamiliar to him. He pushed it away and cried. I felt worried but gave him his usual oatmeal, which seemed to help.

• 8:00 AM - We went to the park after breakfast. Liam loves the sensation of the grass under his feet and the sound of the wind rustling the leaves. But the other kids were too loud, their laughter and shouts seemed to hurt his ears. He tried to join them, but it was too much for him. He pushed one of them, not to hurt, but to understand. The other mothers looked worried, and we had to leave. I felt a pang of sadness, but I understood Liam's need to explore his world.

• 12:00 PM - Lunch was peaceful. Liam had his favorite grilled cheese sandwich. The familiar taste and texture seemed to make him feel safe. After lunch, Liam took a nap. The quietness of nap time is a welcome break from the sensory overload of the world.

• 2:00 PM - In the afternoon, we did some drawing. Liam drew the park, the swing, and the trees. I could see his world through his drawings. I smiled, but I couldn't help but worry about his future.

• 5:00 PM - Dinner was difficult. The smell of the food was too strong for Liam, it overwhelmed him. He pushed it away and cried. I felt tired, but I understood. I gave him some fruit instead, and he seemed to feel better.

• 8:00 PM - Before bed, I read Liam a story. He likes the sound of my voice, it's calming. But I could see the tiredness in my eyes reflected in the mirror. I wish I could do more for him, that I could make the world less overwhelming. But I can't find the words, they're too hard to grasp.

• 9:30 PM - As I lay in bed, listening to the hum of the heater, I felt a mix of exhaustion and determination. Today had its challenges, but also good moments. I know Liam is learning and growing in his own way, and I'm proud of him. Each day is a step in our journey, and I'm learning more about how to support him in a world that isn't always designed for someone like him.