One day with Autism (teenager)

Introduction

My name is Alex, and I'm 15 years old. I've been diagnosed with Autism Spectrum Disorder (ASD) since I was quite young. Living with autism means that my brain works a bit differently from many others. I experience the world with heightened sensitivity to sensory inputs like sounds, lights, and textures, and I have a deep appreciation for routines and patterns.

I'm writing to share a glimpse into my life and the kinds of days I navigate. There are two types of days that stand out: school days and hospital visit days. Each comes with its own set of challenges and routines.

On school days, I follow a structured schedule that helps me manage expectations and reduces anxiety. I enjoy learning, especially subjects that allow me to dive into patterns, like math and science. However, social interactions and unexpected changes can be tough. I often rely on strategies like using noise-canceling headphones and having a quiet corner to retreat to when things get overwhelming.

Hospital visit days are less frequent but require a lot of mental preparation. The sensory environment of a hospital can be intense, and medical procedures can be stressful. I bring along items that comfort me, such as sensory toys and a favorite book. These visits can be draining, but I'm learning to cope with them better each time.

Through these entries, I hope to share the ups and downs, the victories, and the challenges. Each day is a step in my journey, and I'm learning more about myself and how to thrive in a world that isn't always designed for someone like me.

A Day at School

• 7:00 AM - Woke up to the gentle buzz of my alarm clock. I like this one because it doesn't startle me. Mom helped me pick out clothes that feel good on my skin. Sometimes tags and seams can be really bothersome.

• 7:45 AM - Breakfast was okay. I had my usual toast and a banana. I like routine, it makes me feel secure. But the kitchen light was flickering, and that made me a bit uneasy.

• 8:30 AM - The bus ride to school was noisy today. I wore my noise-canceling headphones and focused on the book I'm currently reading about dinosaurs. They fascinate me.

• 10:00 AM - Math class went well. I like numbers because they make sense and follow rules. We learned about fractions today, and I enjoyed the patterns they create.

• 11:30 AM - Lunchtime is always a bit hard. The cafeteria is loud and smells from different foods mix together, which I find unpleasant. I sat at my usual table at the corner, which is a bit quieter.

• 1:00 PM - English class was challenging. We had to do group work, and sometimes I struggle to understand what my classmates expect from me. But I did my best to contribute to the project.

• 3:00 PM - School ended. I was relieved to go home. I like learning, but the end of the day is when I feel most tired from all the social interaction and sensory input.

• 4:00 PM - After school, I spent time in my room with my collection of model airplanes. It's my special interest, and it helps me relax.

• 7:00 PM - Dinner with family. We have a rule of no talking with food in our mouths, which I appreciate because it makes mealtime less chaotic.

• 8:30 PM - I followed my bedtime routine, which helps me wind down. Brushed my teeth, read a book, and then lights out.

A Day at the Hospital

• 6:00 AM - Woke up earlier than usual today. I have a doctor's appointment, and hospitals can be overwhelming. I packed my sensory toys and a book to help me stay calm.

• 8:00 AM - The hospital is bright and there are so many different sounds. I kept my headphones on and focused on the patterns on the floor tiles while we waited.

• 9:30 AM - The doctor was kind and let me take my time to get comfortable. I had to wear a gown for the examination, which felt strange, but I managed okay.

• 11:00 AM - I had some tests done. The machines were loud, but I was brave and thought about my model airplanes to stay calm.

• 12:30 PM - Lunch was difficult. The hospital food wasn't what I'm used to, and the smells were strong. But I found a yogurt I liked, and that was okay.

• 2:00 PM - I had to wait a long time in a small room for more tests. It was hard to sit still, but my sensory toy helped a lot.

• 3:30 PM - The doctor talked to me and my mom about my health. I had questions, and he answered them clearly, which I appreciated.

• 5:00 PM - Finally, we went home. Hospitals are tiring, but I felt proud of myself for handling it well.

• 6:30 PM - Dinner was quiet tonight. I was still processing the day, so my family gave me some space, which I was grateful for.

• 8:00 PM - I stuck to my bedtime routine, even though the day was different. It helps me feel like things are back to normal. These entries are just examples and may not reflect the experiences of all individuals with autism. Each person on the autism spectrum has unique challenges, strengths, and ways of coping with their environment.